In January 2016, I committed to take my dog – Maya – on a really long walk and I committed to use the walk to raise money and awareness for more investment into the medical conditions: Myalgic Encephalitis, Chronic Fatigue Syndrome and FibroMyalgia.
“The frustration of not being able to scratch an itch, or turn over in bed as your body felt like it was made of lead, was gut wrenching.“ Here is Jennifer’s story of how she manages a family with a small daughter and at the same time, keeping her condition under control.
Dealing with ME/CFS/Fibromyalgia is not just your personal suffering and your loved ones’- but also the attitude of society: not taking you seriously as a disabled person.
Ben Howell shares with us his story today about how he went from a very active person building a career in the fitness industry to not being able to exercise or leave the house.
“Each day is a day working towards recovery and finding the strength I never knew I could have.” – Maria When were you first diagnosed with ME/CFS/Fibromyalgia?
“If I decide I want to go out because I’m having a great day, I have to plan the next day around the fact that I know that it won’t be a good day.” Today’s story is from Brianna, my daughter.
The Latest News It seems like ages since I committed to walking the Camino and raising money for ME/CFS activism and awareness.
3 amazing things happened this week First – the fundraising target for my Long Walk on Camino de Norte was reached in less than 24 hours.